Hi
My name is Vineeth and I’m the brother of Risanth who is fighting a very rare immune condition (hyper IgM), we are seeking help and information into curing his condition.
Our family is from VVT (Dads name Ramanathan Arudchelvam) and we want spread the word to everyone in hops of
finding a cure.
Facebook link: www.facebook.com/HelpRisanth
About Risanths’ case:
Risanth is 13 years old, suffering from Hyper IgM syndrome with very complications since 2006 and he is currently in Birmingham Children’s Hospital in the UK.
In short the condition has been characterised by initial ITP( Idiopathic thrombocytopenic purpura) later lymph node swelling, nodal tumors in many organs(liver, kidney and lungs) hyper IgM and lately a tumor in the brain.
Risanth was treated with allogeneic bone marrow transplant with his sister as donor.
The bone marrow transplantation has not helped a lot. Latest MRI shows many findings in brain.
Due to brain affections he has lack of many functions; speech, walk and so on.
Please help him fight Hyper IgM , a very rare life – threatening genetic disorder that plagues his immune system, he is currently undergoing immune suppression treatment at Birmingham Hospital.
We are kindly requesting anyone, especially those in the medical community for advice regarding diagnosis and treatment, in particular the known and unknown therapies as well as clinical trails anywhere in the world that could help Risanth.
PLEASE SHARE THIS POST TO SPREAD THE WORD AND TO FIND A CURE!!!!!
please contact this email address
HelpRisanth@outlool.com
Kind regards
Vineeth
Sent from my iPhone
Sent from my iPhone
